Support sessions
We are developing welcoming in-person and online sessions where people can meet, share experience, and find peer support.
MDCOMMUNITY NON-PROFIT
Building connection, voice, and opportunity.
MDCommunity is an independent non-profit for people affected by muscular dystrophy. We are building practical, community-led work that helps people be heard, connected, and included.
OUR PURPOSE
People should not have to navigate everything alone.
Living with a muscle-wasting condition can mean navigating changing needs, services that do not always join up, and decisions made without enough lived experience in the room.
We are here to bring people and useful experience closer together, work alongside established organisations, and focus on the gaps where a new non-profit can contribute something meaningful.
Read more about MDCommunityWHAT WE ARE BUILDING
Practical work, led by people.
Our work will grow with the people involved in it. These are the areas we are developing first.
Community voice
We create opportunities for people affected by muscular dystrophy to shape the conversations and decisions that affect them.
Inclusion and awareness
We work towards more informed, accessible communities and better everyday understanding of muscle-wasting conditions.
ACCOUNTABILITY
Clear about the work and the money.
We will be open about how the non-profit is run and publish a clear breakdown of the money we receive and spend as our work develops.
Our accountabilityHelp shape what comes next.
We welcome people with lived experience, time, ideas, and useful connections.